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Breath of Hope Inc.
September 22, 2013

The reason people post anonymously here is because Elizabeth cannot delete it and cannot attack them personally for questioning or having concerns. This has long been an issue at Breath of Hope. Posting here also makes Elizabeth publicly accountable for how she responds to CDH families and how honest and factual her responses are.

I would like to ask the Board of Directors at Breath of Hope, Incorporated if the following is true. Your tax returns state that you have given out the following funds:

2012

Research $0.00
Family Grants $0.00
Scholarships $0.00
Pay to Other Charities $200.00

2011

Research $0.00
Family Grants $0.00
Scholarships $1000.00

2010

Research $750.00
Family Grants $0.00
Scholarships $3000.00
Pay to Other Charities $350.00

2009

Research $10200.00
Family Grants $0.00
Scholarships $10000.00
Pay to Other Charities $100.00
Legal Fees $12,309.75

2008

Research $0.00
Family Grants $0.00
Scholarships $0.00
Pay to Other Charities $200.00

2007

Research $0.00
Family Grants $0.00
Scholarships $0.00

Did your charity only fund $750.00 for Congenital Diaphragmatic Hernia research in the past 3 years? Has your charity ever supported any CDH family monetarily through funds at your charity?

I would like to request a very clear honest answer and not one of Elizabeth's full of smoke responses and attacks on others. I also would like to know how much BOH is giving to research and families in direct funds not how much they helped in other ways or indirectly. It is a very simple question of direct monetary support for research and families. By law this information is public.

I received this in my e-mail:


From: GreatNonprofits
To: cdhsuperhero@yahoo.com
Sent: Monday, August 19, 2013 4:52 PM
Subject: New message from GreatNonprofits user

This message was sent to you by a member of the GreatNonprofits community:

From notifying all the nonprofits and groups you listed on your "review". One replied with this link below - if Cherubs doesn't come up - please enter it and search - they are no longer a registered charity in North Carolina and therefore can not fund raise. And each state has it's own rules and regulations for fundraising. Breath of Hope is registered in 10 states, including Virginia.


http://www.secretary.state.nc.us/csl/results.aspx?searchstr=Cherubs
from boh@breathofhopeinc.com
If you'd like to unsubscribe and stop receiving these emails click here.

In response to this I would like to know what 10 states Breath of Hope, Inc. is registered in. This should be public information as well. I would also like to know why you thought it your duty to email me and criticize another charity.

Another email:


From: GreatNonprofits
To: cdhsuperhero@yahoo.com
Sent: Monday, August 19, 2013 3:48 PM
Subject: New message from GreatNonprofits user

This message was sent to you by a member of the GreatNonprofits community:

We will counter this with where is it that anyone who is an official officer with Breath of Hope has stated anything about any nonprofit's salaries?

As for other charities filings - you may want to take the fact that if a charity generates less than a curtain dollar amount in revenue/donations, they do not file a 990 Form for the US.

Chapters are filed under the parent charity but at this time we have been waiting on Team Abel - they have 18 months from the filing they did do in the State of CO to present us with their information or become an independent charity. Shooting for Liam has decided not to go for the chapter designation and just be a program of Breath of Hope.

As for MJ Memories - it is a project of Project Sweet Pea, which is a registered charity. Perhaps you should do a bit more homework on charities and actually ask those charities about their information before making accusations?

We can not answer for charities outside the US and have no knowledge on that subject.

We also find it rather convenient with all the good reviews we have here from real people - the few that are bad reviews are from those that never were served by Breath of Hope and/or anonymous and will not go directly to our charity and ask questions.

from boh@breathofhopeinc.com
If you'd like to unsubscribe and stop receiving these emails click here.

In response, yes every charity has to file a tax return and be licensed no matter the amount of income. I distinctly remember you attacking CHERUBS for not filing when they had little income. Are the laws different for your friends?

You have posted here about Dawn's salary and deleted it. Screen captures have circulated and many of us saw your original comments with our own eyes. Do you still say that you never typed the words publicly posted?

I see that you now have a Gold seal at GuideStar which means that you were audited. Would you make this audit public please? You stated that audits cost $10,000 so this would mean you spent $10,000 out of $16,000 for an audit. Is that true?

Thank you for hopefully an honest and professional response.

Your response:

boh_ wrote: September 23, 2013

And this proves that these anonymous "reviews" are ALL false. In 2008 Breath of Hope sent $550 (with a total revenue of just over $4,000) to CDH Research at Johns Hopkins Medical Center. In 2009, Breath of Hope sent over $15,000 to Saint Louis Children's Hospital for CDH Research. In 2010, Breath of Hope sent $350 to Global CDH for the NYC Marathon which benefited the DHREAMS Study and $750 to Saint Louis Childrens for CDH Research. Also in 2009 we awarded $10,000 in Scholarships to 5 recipients and in 2010, $3,000 in scholarships to 3 recipients. In 2011, one scholarship for $1,000. This is all available on Guidestar on our 990 Forms - you can email boh@brethofhopeinc.com and we will be happy to send you the official 990 Forms - we have them from 2007 when we first started accepting donations through 2012. The 2012 990 Form is not available from Guidestar yet but we will be happy to provide you with the 2012 Form we mailed in May.

My response to this is that the numbers were taken directly from your IRS forms posted on Guidestar including your 2012 form that is also posted. They are the amounts that you sent to the IRS. If that data is incorrect then you should amend your returns. I suggest you also make your returns publicly available freely as Guidestar viewing of forms is not free. This would clear up any confusion donors would have without being subjected to having to ask you for the forms to review or having to pay to see them. It would also assure them that you have not doctored any forms that you send to them and have nothing to hide.

Are you stating that all anonymous reviews and complaints are not valid concerns or opinions but attacks on you and your charity?

Does your charity have a whistleblower policy to keep members and the public safe from the wrath of those criticized?

Thank you for clarifying that BOH has given only $750 in research funding in the past 3 years and overall has spent more on legal fees than research funding in BOH's entire lifespan. You have also spent more on scholarships for individuals of your choosing than on research. Is that correct as well?

I am still awaiting response on the other questions that I posted that you neglected to respond to.

You commented here the following:

boh_ wrote: September 23, 2013

Annual Audits? We collect under $25K a year in donations and revenue, explain this? We have adopted Sarbanes-Oxley Act and Implications for Nonprofit Organizations adopted from Boardsource which includes a whistle blower policy. Over $30,000 has been donated to CDH Research and Scholarships since Breath of Hope was established. We were the first nonprofit organization for CDH to send our Care Packages world wide, that program has existed far before any others out there. We have sent thousands of these packages out and they contain accurate MEDICALLY REVIEWED materials. Our CDH Research Fund from last year will be combined with funds this year to donate to two separate Research Funds. Registration in states? VA, NY, CO, AZ, KS, and there are several pending. Perhaps you should stop updating this list on a daily basis. We have families to support and other things to do than answer some Troll who has nothing else better to do but bash us and several other charities. You brought other charities into this conversation.

I will respond that every donor and member of the public has the right to question any non-profit. We also have the right to receive a professional response to any questions asked including about funding. It is not professional to respond with name calling and defensiveness instead of simple answers.

Breath of Hope, Incorporated from 2007 to 2012 as written on your 990 IRS tax forms:

Scholarships $14,000.00 to benefit 6 people
Legal Fees $12,309.75 in one year
Research $10,950.00 with a total of $0.00 in the past 3 years
Pay to Other Charities $850.00
Family Grants $0.00

You are not registered in Arizona. http://www.azsos.gov/scripts/Charity_Search.dll

You are not registered in Kansas. http://www.kscharitycheck.org/search.asp

Your registration in New York is outdated. http://www.charitiesnys.com/RegistrySearch/show_details.jsp?id={F2F8C045-032E-454D-80FA-5392DACE1064}

Your chapter in Colorado has not filed a 990. http://www.sos.state.co.us/ccsa/ViewSummary.do?ceId=112499

If you have not had an audit you are not eligible for Guidestar gold level charity status. You also do not voluntarily submit financial data to the site. You do not make your financials available freely to donors without gating them at your discretion. You are not a transparent charity.

Why is it not acceptable to hold you under the same microscope that you hold other charities under but with a much cleaner lens? My analysis and questioning has been accurate and professional without any personal contempt or attacks. This is far kinder and more mature than how you have treated others.

If someone has a complaint or question about your charity whom should they speak to? If someone has a complaint about you Elizabeth, is there anyone above you to confer with?

Is anyone overseeing the accounting at Breath of Hope, Inc except for Elizabeth Doyle-Propst?

Is anyone available to respond to questions and concerns here except for Elizabeth Doyle-Propst?

I would like to request copies of your 990s, financial data and meeting minutes for every year sent by email to cdhsuperhero@yahoo.com or posted publicly within 10 business days of September 25, 2013. These records are public record and by law you must grant them unedited to anyone who requests them.

Thank you for your cooperation.

You responded:

boh_ wrote: September 25, 2013

Contact us at boh@breathofhopeinc.com with your requests. For the record, our Board of Director Meeting Minutes are not subject to public review and are not required to be provided. The $12,309.75 was not just for legal council but also for website design and technical support - contracted work. Our scholarships were awarded from a grant we received for this purpose. Awarded to 4 CDH survivors, a RN who did post graduate work who works at CHOP with CDH families, an Aunt to a CDH survivor and a future MD. We didn't give ourselves the rating from Guidestar. AZ registration is pending. CO - 990 Form was not required to be filed and we have yet to hear from them if they want to be an affiliate or a chapter. New York - we registered and have not received any information because it isn't required if your revenue is under a curtain $ amount. You need to do some research before you microscope our charity. We will provide you documentation, when you email us - we will no longer respond to this "public forum" nor are we required to do so. Suggest you make the same requests of others and it is astounding how you continue to post here, bash our charity in support of one that constantly does the same. CDHSuperHero or are you Dawn Williamson, who needs to focus on her charity and stop creating accounts and focusing on others?

Then you edited your comment to:

boh_ wrote: September 25, 2013

Actually Board Meetings are not subject to public inspection. We have provided documents to Guidestar and they are the ones that do the rating, complain to them, not us. When you email us at boh@breathofhopeinc.com and request the documents, we will provide them - but the 990 Forms are available for public inspection on Guidestar too. This is a public forum, you must make a formal request of us to receive the documents. The AZ and KS registrations are pending. As for CO - we explained that they are in formation and have up to 18 months to make the decision to be a separate affiliate or to become a Chapter. A 990 Form is not necessary if their revenue was under $25K. NY does not require annual registration for foreign charities with revenue of less than $25K. Again, formally make your request, we have verified this with the IRS a formal request must be made - you can either email us at boh@breathofhopeinc.com or mail your request at Breath of Hope, PO Box 6627, Charlottesville, VA 22906 and you will receive your requested documents within 30 days.

And then you added:

boh_ wrote: September 25, 2013

Board of Director Meeting Minutes are not subject to public inspection by law. We are registered in NY, AZ and KS are also pending. Guidestar makes those ratings, not us - so complain to them. Not us. We do provide them with documentation and it is available, however the 990 Forms duplicated on the site are unnecessary and those they obtain from the IRS are stamped with the date they were officially received by the IRS. When an organization completes 990 Forms when they do not have to but could file a post card for under $25K in revenue - that shows they are indeed transparent. We do not pay salaries. As for the $12,309.75 includes website design and technical assistance that was contracted work. If you want these documents, formally request them by either emailing boh@breathofhopeinc.com or mailing us at Breath of Hope, PO Box 6627, Charlottesville, VA 22906, we will provide what we are legally to provide you within 30 business days.

In response I say to you that ignorance and arrogance only serves idiots.

I have tried to have an intelligent, professional conversation with you and gave you amble opportunity to be honest. You instead chose to continue to lie, show your lack of knowledge in running a charity and following legal guidelines and still you attack others. Unfortunately your inactive Board of Directors has yet to step in and represent any ounce of professionalism and knowledge of what goes on in your charity.

Your financials clearly show that that amount of money was specifically and solely paid for legal fees. Either you were lying then or you are lying now. That is a theme is that is repeated throughout this conversation.

I requested documents that you are legally obligated to supply. You might put up a smoke screen for others but that does not work for those of us who fact check and choose to not believe you at your ever-changing word. Fail to supply the requested documents and I will report you to the federal government and every state you claim that you are registered in.

This is the real world of professional adults. I suggest that you learn how to conduct yourself like one for the sake of your charity and try a more honest and respectful approach with the public and those your mission says that you serve.

Ways to make it better...

If I had to make changes to this organization, I would...

Create a checks and balances system. Create a full active Board of Directors instead of a dictatorship. Encourage them to be more professional and to focus on their own charity instead of attacking other CDH parents trying to make a difference in the world. Annual audits.

More feedback

How would you describe the help you got from this organization?

None

How likely are you to recommend this organization to a friend?

No

How do you feel you were treated by this organization?

Badly

When was your last experience with this nonprofit?

2013

MY ROLE:
Client Served

Breath of Hope Inc.
August 19, 2013

After reading all the posts this week attacking CHERUBS I had to ask a few rhetorical questions.

Why doesn't Elizabeth focus on her own charity? So what if Dawn makes a salary? Your posts seem jealous and petty. So what if they are late on paperwork? Is that your business? Why don't you look into these charities that Breath of Hope publicly promotes and proudly works with?

Global CDH - Never filed a tax report. http://www.guidestar.org/ReportOrganization.aspx?ein=80-0186856

Nayeli Faith Foundation - Never filed a tax report. http://www.guidestar.org/ReportOrganization.aspx?ein=80-0417228

Parker Reese Foundation - No tax report since 2009. http://www.guidestar.org/ReportOrganization.aspx?ein=26-1737136

CDH UK - 44 days late on their financials this year. http://www.charitycommission.gov.uk/search-for-a-charity/?txt=cdh+uk

Ladybug Run - Not a registered charity.

MJ's Memories - Not a registered charity.

Breath of Hope-Colorado Chapter - Not a registered charity.

Breath of Hope-Shooting for Liam Chapter - Not a registered charity.

Breath of Hope - Hypocrites.

More feedback

How would you describe the help you got from this organization?

None

How likely are you to recommend this organization to a friend?

No

How do you feel you were treated by this organization?

Badly

When was your last experience with this nonprofit?

2013

MY ROLE:
Client Served