I became involved in 2008 when my 25 year old brother was diagnosed with AML. LLS was there right away for him to help a bit financially but more importantly to help him understand and cope with his illness.
To the comments related to patient support...that is a goal of LLS. They support and educate patients and their families AND support research concurrently. That said, the focus is and should be on research because that's what will save the most patients in the future. Within patient services, I'd argue that emotional and educational support are much more valuable than a check for medical expenses anyway.
My brother lost his battle to leukemia in 2010 and I've been team captain of his Light the Night Walk team since, raising about $38,000 to date. I serve on the fundraising committee for our local walk and have had exposure to nearly every employee at the Maryland chapter. The people who work at LLS are amazing because they are so committed and vested in the cause. It's not a job to them; it's their life work.
With regards to the comments about the CEOs pay...please don't let that deter you from donating. The fact of the matter is this: CEOs at private companies make a lot more. The CEO of a nonprofit has the same skill set and he/she chose to take a considerable pay cut to work for a charity because they believe in the cause. We can agree that they shouldn't have the same pay as for-profit CEOs but at the same time, like it or not, you have to pay if you want to attract top talent. I think John Walter has done a great job as CEO since his appointment in 2008. He deserves every penny he's paid.
LLS is just an amazing charity for a great cause and I'll continue to support them until cancer is cured.
Ways to make it better...
If I had to make changes to this organization, I would...
Continue to market the organization in a financially responsible way - more people need to know about LLS.
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