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Cornelia de Lange Syndrome Foundation, Inc.
August 7, 2013

We have been part of the CdLS Foundation from it's earliest days. With a tiny newborn in 1977 and no information, we groped our way through each day. When the CdLS Foundation began in 1981 by a group of parents scattered across the country-hope, support, information and advocacy began for us. Today the Foundation is an extraordinary organization of families, professionals and friends, now numbering in the thousands. The information and support that can now guide families is awe inspiring! What an accomplishment ! Our Adam died in 2001 but the CdLS Foundation is still there or us .

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