August 6, 2013
My son was diagnosed with CDLS at birth. The foundation provided me with much needed information and answers to questions that I could not seem to get elsewhere. They helped me connect with other families and to the CDLS clinic in Philadelphia (we live in Florida). Without them I feel I would still be lost having a son with a syndrome I had never heard of before. With their help I feel my son is on the right path and I have gained a great amount of knowledge on things I can expect and be watchful of for his future. Thank you CDLS foundation!
How would you describe the help you got from this organization?
How likely are you to recommend this organization to a friend?
How do you feel you were treated by this organization?
When was your last experience with this nonprofit?
MY ROLE:Client Served