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Cornelia de Lange Syndrome Foundation, Inc.
August 6, 2013

My son was diagnosed with CDLS at birth. The foundation provided me with much needed information and answers to questions that I could not seem to get elsewhere. They helped me connect with other families and to the CDLS clinic in Philadelphia (we live in Florida). Without them I feel I would still be lost having a son with a syndrome I had never heard of before. With their help I feel my son is on the right path and I have gained a great amount of knowledge on things I can expect and be watchful of for his future. Thank you CDLS foundation!

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