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LisaMarieDarby

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Children's Cardiomyopathy Foundation, Inc.
July 13, 2013

After our daughter's diagnosis CCF was a great source of information. Our daughter was 3 at diagnosis and we often visit the List Serve for questions and answers. I find both to be a wealth of information. The list serve is a great place to post questions and have real parents answer with their experience. I use CCF as my second source of information - only second to our pediatric cardiologist on staff at Lurie's Childrens Hospital. By the way CCF supports further education to cardiologists which my daughters cardiologist has highly recommended. I will continue to support CCF and all their efforts. I especially support pre-testing for ALL ATHLETES. Thank you CCF.

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Unsure

How much of an impact do you think this organization has?

A lot

When was your last experience with this nonprofit?

2013

MY ROLE:
General Member of the Public