My Nonprofit Reviews
Review for Chiari & Syringomyelia Foundation (CSF), Staten Island, NY, USA
CSF has been incredibly helpful to myself and my family as we faced my daughter's diagnosis of Chiari and Syringomyelia in early 2012. They have wonderful resources with all the information you could possibly ask for regarding both and much more! My daughter and I have both attended several of the free seminars which have been incredibly insightful and it helps my daughter to know she is far from alone! This was our first year participating by starting our own Charter in Clyde, Ohio and having our CSF Unite@night walk and it was overwhelming the community support and to find so many other people in our surrounding area effected with this. CSF and the volunteers go above and beyond to spread awareness, help out in any way possible. It is an amazing relief to already worried parents to have CSF , all their information, compassion and caring people who will do whatever they can to share any and all info they have. Thank God for CSF and all it's many volunteers!
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