June 26, 2013
My wife suffers from Inclusion Body Myositis (IBM). Through membership in TMA and in our local support group we have learned so much about this rare disease that we had never heard of prior to her diagnosis. As a volunteer member of the TMA board of directors I am aware of how the scarce resources of the organization are used and, in my opinion, the organization is very well run. The annual patient conference is a wealth of information and support for myositis patients and caregivers. The quarterly newsletters and random e-mails are full of useful information directed at this rare disease.
Will you volunteer or donate to this organization beyond what is required of board members?
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When was your last experience with this nonprofit?
MY ROLE:Board Member