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MFAinNJ

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Kids With Food Allergies Foundation
June 10, 2013

I started out with KFA when it was a Yahoo group in 2005, a few months after my son was diagnosed with multiple food allergies. I did not become an official volunteer until 2013, so I feel like I can write from both the perspective of a volunteer and long term client.
More than any other organization, KFA helped me figure out what to feed my son early on, especially how to bake, and also time-saving methods. When someone in your family is allergic to 12 different things you spend an awful lot of time in the kitchen, shopping, scouting for new food and different supplies, pre-planning for parties, and don't even get me started on vacations. It's like being on a never-ending expedition, but you have your own virtual search and rescue team to guide you in the form of other parents who have gone through this before - with schools, camps, and difficult relatives!
I learned that my reactions to thorny situations are normal, but manageable. That is the key thing - this is a livable illness. It just requires more prep and thought.
Now I'm a vet, about to enter the adolescent years with him, which brings a whole new set of challenges. As this population of kids grows older, so will their needs, and I suspect our discussions on KFA will change as well (it is mostly parents of younger kids who sign on looking for help, but what am I going to do when he starts dating? Aieeeeee!)

Ways to make it better...

If I had to make changes to this organization, I would...

I appreciate the merger with AAFA and I look forward to more professional advice in the areas of advocacy. While we focus on the positive aspects of living with food allergies, we should unite our voices in the areas of public policy that affect our families the most. I think we probably have an untapped resource in our membership.

More feedback

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Quite well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

MY ROLE:
Volunteer