Since MIF makes it a priority to investigate the latest treatments and their results, it makes me feel as though I have an advocate. The knowledge I have gained from reading forums and watching reports by doctors who respectfully treat their audience as an intelligent resource has given me a very positive outlook.
The site really makes me feel like a part of a community of medical discovery, very important for a person going through a disease with so few viable treatment options. When I was first diagnosed I was told that I had about a 13% chance that a treatment would work! Pretty scary stuff.
Ways to make it better...
If I had to make changes to this organization, I would...
maybe have a section where people can write their treatment/survivor stories. This might be inspirational to others. This could be accomplished on another website I suppose.
How would you describe the help you got from this organization?
How likely are you to recommend this organization to a friend?
How do you feel you were treated by this organization?
When was your last experience with this nonprofit?