GreatNonprofits: Find non-profits and charities to review, donate, or volunteer.

Oops! You must enter a search term greater than 3 characters.

savvimahi

savvimahi - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits
47 Profile Views
1 Reviews

Login to send private message
Click here to get your favorites badge.
National Tuberous Sclerosis Association Inc
June 3, 2013

I hadn't ever heard of tuberous sclerosis when our son was diagnosed at 3 weeks of age. I remember being in shock upon receiving this diagnosis. I visited the Tuberous Sclerosis Alliance website almost immediately and had no idea what our future would hold. I remember reading through resources for the newly diagnosed and printing off a notebook that would help me organize all my son's medical care. I still use the notebook today, four years later. The TS Alliance has continued to provide invaluable resources as we navigate our lives with TSC.

More feedback

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

MY ROLE:
Client Served