My Nonprofit Reviews
Review for National Tuberous Sclerosis Association Inc, Silver Spring, MD, USA
My Name is Angelika Kodat and I am the Vice Chair of the German Tuberous Sklerosis association ( TSD eV ) and I am also the president of the new European TSC Association ( E- TSC ).
I am a mother of 4 children ( two Girls and two Boys ) , the 2nd has TSC. The children are between 22 and 17 years old.
I am involved with the TA Alliance since 2006. They all are doing a great work for all the TSC affected People around the world. That`s why I make so much contacts in Europe to be stronger against TSC. And now we have E-TSC. Thank you so much TS Alliance for your well example!!!!
With the contacts around the world, specially with the US and almost the CCHMC in Ohio (Prof. Franz and his Team ) . Then there is Katie Smith, a wonderful Person and a wonderful friend to me.
My daughter Anni had a very strong crisis 3 years ago. And without the contact to David Franz and others we didn`t manage it. Now she is 20 years old, seizure free and I am so blessed for the TS Alliance ( Katie Smith ) and Prof. David Franz. Thank you so much for your help in that worse time!!! That is Support around the world against TSC, . We are helping each other at each time ( think about the time difference). I am glad to know so much members of the TS Alliance and around the world. Thank you!!
Vice Chair of the German Tuberous Sklerosis Association ( TSD eV)
President of the European TSC Association ( E-TSC )
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