May 28, 2013
With a rare disease it is hard to find helpful, timely, correct information. PHA supplies all that in a user friendly way. And if the information you seek is not on their web site the staff will go out of their way to help you find it. In addition to detailed about this disease, they also provide guidance about support groups, conference, and how to get financial help if needed. They have helped me in so many ways, while always deferring medical decisions to my Drs.
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MY ROLE:Client Served