April 25, 2013
My daughter Myiah was born with a rare neurological brain disorder known as Rett Syndrome. There are not a lot of doctors who specialize in this particular genetic disorder. Miracle Flights provided us with the opportunity to travel to Oakland, California to meet with doctors who deal with Rett Syndrome on a daily basis. It was an all around amazing experience to get answers to our questions regarding our daughter's health. But the most impressive thing was that our daughter was able to communicate for the first time EVER. We met with an AAC specialist who is world renowned for her work with the eye gaze on girls with Rett Syndrome. She uses a special computer, called a Tobii, with a special eye gaze system to help non-verbal girls communicate. For the first time since Myiah was born, she was able to communicate her needs with us. She informed us that she was hungry, she was in pain and that she wanted to be done. Having her tell us her needs over the constant guessing game was beyond thrilling. It immediately moved me to tears! Thank you Miracle Flights for the amazing opportunities that you provide to families like ours! We are beyond grateful for your services!
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MY ROLE:Client Served