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Mainer

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Long Island Alzheimer's Foundation, Inc.
April 17, 2013

I became an indirect client of LIAF when it became apparent that my mother, who lived alone in Port Washington was having significant issues with memory. Our journey with LIAF spands several years.

The first time we visited, after a pleasant intake meeting, my mother decided she didn't want to have any part of what they offered. A year later she admited it was because she was afraid of the word 'alzheimer' in the title. At that time her diagnosis wasn't confirmed - mild cognitive impairment was the phrase being used.

Over a two year period I interacted with several professionals in the area (primarity social workers with a focus on the elderly). My mother tried a different day program that was connected to her religous congregation. It was not a match for her. So we returned to LIAF - the draw being that she could still drive herself there as it was within the boundaries of her town (which she loved and had lived for 45 years) because she would still get around without getting confused.

In total honesty, of all the professionals I have delt with over my mother's disease, the only one who has actually been helpful - who actually followed through with the commonly mouthed phrase, "You are not alone with this." works at LIAF. Her professionalism is top notch. Her care, respect, consideration, and understanding of my mother - along with her creativity and grace in supporting family members brings tears of gratitude to my eyes.

When the time came for my mother to decide where she would move to - as she could no longer live alone - LIAF helped us navigate this very painful decision. Painful because my mother didn't want to leave her town yet a part of her knew she wanted to give up her home. It was this staff member that helped my mother shift an old habit of 'independence at all costs' to a new strategy of allowing herself to rest a bit into the support and love of her children - particularly me - by moving close by.

Even after my mother moved 500 miles away - I knew LIAF was a support to me as care-giver. From time to time I call to talk through an issue. The support & insights I gain are always the most supportive. Our experience with LIAF is a light of love and care and true help. It changed our lives for the best through this most challenging journey.

More feedback

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2010

MY ROLE:
Client Served