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BurksAuntie

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Global Hydranencephaly Foundation
April 14, 2013

My niece, Burkleigh, was diagnosed with Hydranencephaly while she was still in her mommy's stomach. I sought out any and all information I could get. My mother actually stumbled upon the Global Hydranencephaly Foundation web page and invited me to join the Facebook page. It's truly an amzing thing to know you're not alone while dealing with a disease like this that affects only 1 in 10,000 babies. This foundation is absolutely amazing and I'm so blessed to be a part of it.

More feedback

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

MY ROLE:
Volunteer