My Nonprofit Reviews
Review for Dravet Syndrome Foundation, Inc., West Haven, CT, USA
My 8 year old son Bryant Weasel was recently awarded an IPAD 2 from the Dravet Syndrome Foundation. Bryant suffers from Dravet Syndrome and began having seizures when he was 3 months old. At the age of 18 months Bryant experienced a status seizure that lasted 2 hours and 45 minutes. After that seizure Bryant lost his ability to speak, walk and began to show intellectual delays. At this time Bryant continues to be delayed globally. Although his receptive speech is almost on target his expressive language is that of a 2 yr old. The IPAD that was funded by the DSF will be used as an Augumentive Communication Device utilzing the PROLOQU App. He has been using the device at school and his IEP team recommended one for home use. Our private insurance denied this request. We are truly excited to be given the opportunity of getting such a fantastic device and are delighted to watch as Bryant will now be able to express his wants and needs. Thank you so much!! This organization is TRULY AMAZING!!!! :)
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