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Robin59

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CENTER FOR HOSPICE CARE SOUTHEAST CONNECTICUT
February 15, 2013

Being a parent of her first born diagnosed with Acute Lymphatic Leukemia was hard but what took our family down was the diagnosis of being out of remission and never being able to fight the cancer. Hospice came to us as our 12 year old son, Ethan was near the end of the battle. We as parents who had never experienced anything like this were so very lost with what decissions to make and all too proud to allow others in our home. We felt like no other person could care for our child like we could and being that he spend most of his life in hospitals...I forgot to mention that he also had cerebral palsy and also had other issues with seizures. Hospice Of SE CT came in and helped us. The gave us the information we needed, they assisted with every day needs so I could spend the final time with my son. Hospice's staff knew we were fragile and helped us gain the strength to move forward.
We ultimately decided to keep Ethan at home to live his last days with us. We also had days that he felt well enought to attend school, Hospice SE CT went into his school and worked with the staff in the elementary school to answer all of their questions and help them through this hard time..
Ethan passed in 1997, 4 months after his not being able to go into remission. For those four months Hospice was our family and our rock. We could not have been as strong as we were if it were not for them.
I now support Hospice of SE CT with all that I can. I feel honored to see them be able to grow into a Center for Hospice Care. I consider myself an advocate for Hospice Care.
When Ethan passed I remember at that moment looking at my husband and tearfully saying - "this is how I want to leave this earth, with the people I love around me" Hospice made that happen for us.

More feedback

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

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Client Served