January 17, 2013
My daughter has Rett syndrome, and it robbed her of every skill needed for independence by 18 months of age. We lost our way as parents with this diagnosis. But with the immediate help and information from this organization, I was gifted trusted information and a solid foundation from which to be believe in the potential of research, and I learned the most effective things that I could do to keep her healthy and thriving. Today she is 10 years old and still working so hard every day. We are so proud of her. Without the right information from Day One, I don't think that would be the case. I have now dedicated myself to helping others in the same way while advocating for and supporting the advancement of research. We have not given up Hope, and that is a precious thing. Thank you IRSF! You have our trust and support.
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MY ROLE:Client Served