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National Organization for Rare Disorders, Inc.
January 9, 2013

A representative from NORD made me cry today when applying for financial assistance for my son's rare disorder. I could not believe how insensitive she was. Then, when I called to see if I could work with someone else, the supervisor who later contacted me only left the main number so I could not call her back directly. It makes me very sad that an organization that is supposed to support patients with rare disorders and their families treats people this way and I hope it is not typical.

More feedback

How would you describe the help you got from this organization?

A little

How likely are you to recommend this organization to a friend?

Unlikely

How do you feel you were treated by this organization?

Badly

When was your last experience with this nonprofit?

2013

MY ROLE:
Client Served

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