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allong08

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1 reviews

Review for Twin To Twin Transfusion Syndrome Foundation, Inc., Bay Village, OH, USA

Rating: 5 stars  

Without this organization I would not have my 17 year old girls. I was diagnosed in June of 1995 with TTTS and was put in touch with Mary. Not only did she put me and my husband at ease, but she put us in touch with Dr. DeLia. Without the foundation I would not have been put in touch with anyone and would have lost my girls. They were a severe case and would not have made it to term. Mary wasn't some cold person on the other end that had no idea what I was going through, she too had experienced TTTS. That was important to me. It was important that someone who was telling me there was hope, knew personally what my fears were. I cannot speak highly enough about the foundation and what it means to me. I was blessed with being able to see Mary again this summer (2012). She is the same Mary she was years ago. Also, the foundation back then was able to assist with the cost of the surgery. They covered what my insurance did not. They put my husband up in a near by hotel. I know that since so many more people know of the options out there now, it is not possible to do that.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

Role:  Client Served