December 9, 2012
This organization does spread awareness. It provides information and support down to an individual level about TTTS. It helped our family through early detection, and provided support through the last and toughest part of our pregnancy. They gave us the material to advocate for ourselves and inform ourselves. I have unfortunately noticed other pretentious organizations/individuals slandering through various social media venues which is a shame, as this group has formed numerous bonds with families, Doctors and Hospitals. The awareness conference was a great bonding experience for families to gather together for a single purpose and was an awareness weekend. The Foundation has been in existence for 23 years and does not receive funding for all fetal syndromes, only TTTS.
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MY ROLE:Client Served