November 30, 2012
Diagnosed with multiple myeloma in 2006, I searched all over to find information about the disease. The International Myeloma Foundation (IMF) sent me a free package of their publications. They were extremely informative and helpful. As the IMF says, "Knowledge is Power", and they do wonderful things to help educate patients and caregivers. Their Hotline is a Godsend for patients and caregivers seeking expert information and advice. I attended several of their wonderful Patient and Family Seminars, where myeloma expert physicians give excellent talks and answer any and all questions individuals have. The IMF also helped me to start a Multiple Myeloma Support Group, providing funding for startup efforts, and offering great advice, visiting speakers, and a regional support group coordinator to answer any and all questions I had. In addition, they have an annual Support Group Leader Summit, a weekend of valuable education and shared discussion with leaders nationwide and myeloma experts. They also educate medical professionals, fund critical and productive research to help find a cure, coordinate international medical efforts through the International Myeloma Working Group, and run a Nurse Leadership Board that creates excellent publications on supportive care for myeloma patients. And much, much more. Bottom line: the IMF is the bright star lighting the way for folks impacted by multiple myeloma.
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MY ROLE:Client Served