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Debbie68

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Lynch Syndrome International
November 30, 2012

Just got my results back which to me were a no kidding, yep, it's Lynch Syndrome. My mom, 3 of her brothers, me and 2 of my brothers have had colon cancer. It doesn't stop there, I've had intrauterine cancer, brother, also had renal and bladder cancer, sister with ovarian cancer, another sister with anal cancer. I have anal dysplasia, which the doctors will not pro-actively treat......oh my, they're just warts!!! REALLY??? When my sister just had anal cancer and my anal warts are exactly the same??? Definition of anal dysplasia....abnormal cells that typically turn into cancer.Unfortunately, after badgering my doctor into throwing up his hands and admitting I don't know, he did admit that there hasn't been much testing on anal cancer because most cases are aids related. One of my children has been tested and does in fact have lynch syndrome. She has had her children and plans to pro-actively treat this by having a complete hysterectomy.

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Likely

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Some

When was your last experience with this nonprofit?

2012

MY ROLE:
General Member of the Public