November 21, 2012
I attended a bake sale held by EDSers United this past summer where I was able to meet the founder of the organization, Nadia Bodkin. She was one of the most kind and dedicated people I have ever met in my life. My daughter, age 15, had been dealing with many of the symptoms described in EDSers United's pamphlets for years without much explanation. We took some literature off of the site and brought it to her doctor who said "hmm sounds like something we should be looking into." Without further delay we went to a geneticist at Hackensack University Medical Center and low and behold there it was. Her official diagnosis and answers to all of the questions that has been plaguing us since she was a little girl. I thank God ever day my husband's love for baked goods or we may never have come across this condition haha. I will forever be indebted to the church and EDSers United and plan on volunteering at their next event. My daughter and I have a new found closeness thanks to you. Thank you a thousand times Nadia and EDSers United.
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MY ROLE:General Member of the Public