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Andrea P.

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1 reviews

Review for Cornelia de Lange Syndrome Foundation, Inc., Avon, CT, USA

Rating: 5 stars  

My son was diagnosed with Cornelia de Lange Syndrome shortly after his birth. Since that time, the Foundation has been a wealth of knowledge for my family and his healthcare providers. The Foundation not only provides the families of those living with CdLS a trust worthy resource of medical information it also provides love and support for the family and individual. At no charge to families, friends, doctors and supporters, the Foundation sends out newsletters. They also coordinate family gatherings. This Foundation truly exists to support CdLS.

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2012

Role:  General Member of the Public