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Beth66

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1 reviews

Review for Cornelia de Lange Syndrome Foundation, Inc., Avon, CT, USA

Rating: 5 stars  

My son was diagnosed with CdLS when he was born 11 years ago. The information I found on line was very scary. The foundation provided real information, and helped us learn the truth about what to expect. They got us in touch with experts who could help, and get us connected with other families who share this CdLS journey. We are eternally grateful for all they have done to help us and so many other families. The opportunities provided to meet with other families has been a true blessing. The staff is very compassionate and kind and committed. They'll even provide information directly to your doctor, and have professionals who will be happy to communicate with your child's providers.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

Role:  Client Served