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MomToRobyn

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Williams Syndrome Association
November 18, 2012

My son was diagnosed with Williams Syndrome by his cardiologist at 3 years old. I was terrified. The first place our doctor told us to go was the Williams Syndrome Association. There I found an organization of caring people dedicated to helping families cope with all aspects of WS, providing valuable and accurate information about WS, spreading awareness in the educational and medical communities, supporting cutting edge research into the various medical and developmental issues of WS and connecting families so that they could share their experiences and resources. Through the WSA I met many other wonderful families on facebook. I now belong to a fabulous support group which is supported by the WSA. I am continually impressed by this organization which has been the most useful resource for WS I have found. They recently celebrated 30 years spent working to enhance the lives of those with Williams Syndrome...of all ages. I will forever be grateful to the WSA for all they have done and continue to do.

More feedback

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

MY ROLE:
Volunteer