November 14, 2012
What a blessing it is that DECF has been brought to the United States. My son was diagnosed with sporadic unilateral retinoblastoma in 2004. We were absolutely blindsided and were desperate to find other families going through the same thing. Unfortunately, we went through the beginning of our Rb journey alone. I recently became aware of DECF in the USA and immediately joined the Facebook groups. It is wonderful to see the support available to people starting their Rb journeys as well as families like us who are well into them. I have recently volunteered to serve on the Board of DECF USA as Treasurer. I am dedicated to furthering the good this wonderful organization has already started and I truly believe we can accomplish great things.
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