November 13, 2012
I am the wife of an Rb survivor and the mother if a child who was diagnosed with Bi-Rb at the young age of 5 weeks old. So grateful for DECF on so many levels. The family and friends I have met through this journey has made it that much easier on me going through this with my son. I have been given what no doctor can tell me, not because of their lack of knowledge.... Lord know that is not the reason. The experiences that we encounter, the ups and downs of this emotional rollercoaster, the parents understanding us on a different level that no doctor can tell me. To hear te words from another parent saying "I get it!" makes me realize you don't and should not have to do this alone. There is support I am so very blessed to have in my life.
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MY ROLE:Board Member