GreatNonprofits: Find non-profits and charities to review, donate, or volunteer.

Oops! You must enter a search term greater than 3 characters.

DRGS

DRGS - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits
56 Profile Views
2 Reviews

Login to send private message
Click here to get your favorites badge.
Dysautonomia Foundation, Inc.
November 26, 2012

Familial Dysautonomia is a rare genetic disorder that causes severe problems to the gastrointestinal, cardiac, pulmonary, orthopedic, renal, and ophthalmological systems. The Foundation has funded research and treatment leading to the identification of the gene, possible gene therapies, and extended life expectancy as well as improved quality of life for those afflicted. In its short history, the Dysautonomia Foundation has made an incredible difference for these patients and their families. In addition, it raises awareness among the general population to identify carriers before they have children. My niece has this disorder and is now 23 years old, when her life expectancy at birth was only 10 years, thanks to the work of this non-profit and its devoted medical personnel, volunteers, and donors. My family is now able to be tested to determine if they are carriers, thanks to the work of the foundation. In addition, the foundation has made it possible for FD patients to be designated as developmentally disabled, giving them access to educational and social services. Even though this is a rare disorder, the scientific work of the foundation has applicability to understanding and helping other disorders and disabilities.

More feedback

Was your donation impactful?

Definitely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

When was your last experience with this nonprofit?

2012

MY ROLE:
Donor

IWO JIMA MEMORIAL HISTORICAL FOUNDATION INC
November 9, 2012

This is a very beautiful, tasteful, and easily accessible memorial. The perpetual flame and the inscribed information on the sculpture are especially appropriate, adding to the emotional impact of the site. My uncle, whom I never met, gave his life at Iwo Jima, and is now memorialized on one of the engraved bricks. We brought our 94-year old father here, and he was deeply moved. Thank you to all who made it possible and who continue to maintain this important historic site.

More feedback

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2012

MY ROLE:
General Member of the Public