November 7, 2012
I found DES Action online about 1 1/2 years ago. Up until then I spent much of my life not knowing what was really wrong with me. My mother was given a pre-natal vitamin that contained DES. Her Doctor never told her it was more than just a vitamin. He simply dispensed them to her in his office. No prescritiption, so as far as she knew, she never took any "drugs" throughout her pregnancy. On top of that, her pre-natal care records and my birth records were destroyed in a fire. Until my early 40's I had no name for my problems and I had no idea why I was so defective. For decades I hated going to the Gynecologist. Many told me pregnancy would be difficult if not impossible, A few even suggested scary sounding treatments. But none of them told me why. I was so scared and felt like I must be the only one like me out there. Through DES Action, I not only found others like me, I learned that I was a DES Daughter and that there are other health risks including an increased risk for breast cancer that I may face as I age. I have found this organization to be so valuable and I am so glad it is there for me. It is sad to think there are still women out there that do not know of their exposure. There is so much more we have to learn and DES Action is playing a vital role in ensuring the research continues and the exposed get the information they need to make the best decisions when it comes to their health care.
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MY ROLE:Client Served