November 7, 2012
I discovered in my early 20's that I'd been exposed to DES. Terrified, and without the benefit of my mother to guide me (she died suddenly at age 48), I desperately searched for any information I could find, which was extremely little. The doctors were uninformed, for the most part, also. I was blessed to locate an oncologist/DES researcher, who told me about DES Action. I was immediately impressed with the informative, thorough articles. Because my mother was given one of the largest doses prescribed, throughout most of her pregnancy, I was born with a more unusual reproductive structure than most DES exposed women, causing a number of health issues. I've learned that I've had to be my own health advocate over the years, and DES Action has been a reassuring and expert resource. DES is a life long issue. I am so very thankful to know DES Action is a voice for us, providing resources and advocacy!
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