November 7, 2012
When my mother was diagnosed with idiopathic pulmonary fibrosis, I had never heard of the disease before. Soon thereafter, a family friend was also diagnosed, and eventually the son of the family friend was diagnosed. Watching someone you love live with fear in their eyes every single day as they grasp for breath, change from an extremely active healthy person to one that cannot carry dishes from the kitchen to the dining room, and spend hours everyday trying to cough a paste-like substance out of their lungs, to the point of exhaustion, is something I would not wish on anyone. While it impacts so many people, including most recently my boss's father, I am continuously surprised at how few people know about this devastating illness. When we were looking for information, a support system, or a resource we could not find one at the time. It is imperative that the Pulmonary Fibrosis Foundation have more attention and funding to help our loved ones and their families when they are faced with this disease.
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MY ROLE:General Member of the Public