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Christine54

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1 reviews

Review for Dravet Syndrome Foundation, Inc., West Haven, CT, USA

Rating: 5 stars  

the dravet syndrome foundation has helped so much with our family. Our daughter daignosed at age 1.5 with dravet syndrome. we were a mess and had no where to turn. We found this foundation and felt we had a family and support that we could never imagine. In most cases people feel that have to go thru things alone and when we found this foundation we were no longer alone. they helped up with sings symptoms and other support to help us find a way to deal with this horrible disease that destroys our kids. We started to show our support back with doing a walk and getting our community involved in this foundation to find a cure. We pray that some day the will find a cure for our kids.

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2012

Role:  General Member of the Public