November 5, 2012
Idiopathic Pulmonary Fibrosis(IPF)is a terrible diagnosis---like cancer but without treatment or cure. The PFF guides each of us to best current information...including Clinical Trials, Support Groups, world experts. They answer our questions about options...including lung transplants. They're there for us person-to-person to answer questions...or direct us to where we can get answers. PFF is the worldwide leader in Consilience(the Unity of Knowledge)...sponsoring conferences for leading researchers..OPEN TO PATIENTS. It's made a great difference in my life, shifting my focus to how I might be helpful to others confronted with this disease.
More feedback
How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
MY ROLE:
Client Served