November 5, 2012
Idiopathic Pulmonary Fibrosis(IPF)is a terrible diagnosis---like cancer but without treatment or cure. The PFF guides each of us to best current information...including Clinical Trials, Support Groups, world experts. They answer our questions about options...including lung transplants. They're there for us person-to-person to answer questions...or direct us to where we can get answers. PFF is the worldwide leader in Consilience(the Unity of Knowledge)...sponsoring conferences for leading researchers..OPEN TO PATIENTS. It's made a great difference in my life, shifting my focus to how I might be helpful to others confronted with this disease.
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MY ROLE:Client Served