My Nonprofit Reviews

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Review for Dravet Syndrome Foundation, Inc., West Haven, CT, USA

Rating: 5 stars  

The Dravet Syndrome Foundation is truly a great organization. As a parent of a child with Dravet Syndrome, it is so reassuring to know that there is a group of people that are working so hard to raise money to support families and most importantly to fund valuable research projects. There are so many rare disorders out there that aren't getting any attention or dollars, but to think that our cause has such strong support is just amazing! I have been so impressed with the leaders of the DSF by their professionalism, integrity and pure passion for the mission to find a cure for our children. For the past two years, our family has been privileged to work with some other families to do a fundraising walk for the DSF. The process is so organized and they make it both easy and fun to raise money to go towards research. I cannot say enough good things about the DSF!

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Role:  Volunteer