November 1, 2012
Dravet Syndrome Foundation is an amazing organization dedicated to raising funds for research into Dravet syndrome and related conditions. Not only do I serve as the secretary, but I am the mother of a 7 year old girl who has a "dravet-like" epilepsy. The support and understanding gleaned from the community surrounding DSF is simply amazing. My family continues to support and volunteer for DSF because we know they provide such a concrete plan to find answers for the afflicted individuals and families. I am honored to serve with the working board and director, as we are all moms putting our passions, talents and desires to make a difference to good use. DSF is just incredible!!
Will you volunteer or donate to this organization beyond what is required of board members?
How much of an impact do you think this organization has?
Will you tell others about this organization?
When was your last experience with this nonprofit?
MY ROLE:Board Member