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John104

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1 reviews

Review for Rare Disease United Foundation, Rumford, RI, USA

Rating: 5 stars  

The Rhode Island Rare Disease Foundation (RIRDF) is a very special organization in that it helps unite people from all over the world with each other as well as the medical community. In so doing, it becomes not only a source of support for those with rare diseases, but also a network for communicating valuable medical information many may never have discovered otherwise. For the millions of people with rare diseases--statistically, ten percent---the hope is the RIRDF will become a valuable, sought-after resource that will place both knowledge and comfort at the disposal of those needing them most. Indeed, it already has. While only a fledgeling entity, it has to date already begun to unite many, many people in these ways. Chances are either you or someone you know is affected by a rare disease, so please visit www.rirdf.org to learn more about this fanatastic organization.

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2012

Role:  Board Member