October 31, 2012
The Rhode Island Rare Disease Foundation (RIRDF) is a very special organization in that it helps unite people from all over the world with each other as well as the medical community. In so doing, it becomes not only a source of support for those with rare diseases, but also a network for communicating valuable medical information many may never have discovered otherwise. For the millions of people with rare diseases--statistically, ten percent---the hope is the RIRDF will become a valuable, sought-after resource that will place both knowledge and comfort at the disposal of those needing them most. Indeed, it already has. While only a fledgeling entity, it has to date already begun to unite many, many people in these ways. Chances are either you or someone you know is affected by a rare disease, so please visit www.rirdf.org to learn more about this fanatastic organization.
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MY ROLE:Board Member