October 30, 2012
This small foundation has been one of the most effective of its kind in bringing together families in the U.S and partnering with its sister organizations worldwide to promote research and improved clinical care for children and adults with alternating hemiplegia of childhood (AHC). In December 2010, they won a Pepsi Refresh award, which provided the necessary funding to finally find the gene causing this disorder, after a dedicated effort spanning more than 15 yrs. This organization is one to watch. Big in heart, though small in overall dollars, they are a force to be reckoned with.
How does this organization compare with others in the same sector?
How much of an impact do you think this organization has?
Will you recommend this organization to others?
When was your last experience with this nonprofit?
MY ROLE:Professional with expertise in this field