My Nonprofit Reviews
Review for VHL ALLIANCE, Boston, MA, USA
I was diagnosed with VHL almost two years ago. The only reason I got the genetic testing for VHL was because of the VHL Family Alliance. The information provided and the outpouring of support from this group has helped tremendously in guiding me to find proper treatment.
Will you volunteer or donate to this organization beyond what is required of board members?
How much of an impact do you think this organization has?
Will you tell others about this organization?
When was your last experience with this nonprofit?