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Karen VHLgirl

Karen VHLgirl - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits
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VHL ALLIANCE
October 29, 2012

I was diagnosed with VHL almost two years ago. The only reason I got the genetic testing for VHL was because of the VHL Family Alliance. The information provided and the outpouring of support from this group has helped tremendously in guiding me to find proper treatment.

More feedback

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2012

MY ROLE:
Board Member