October 28, 2012
I was struck to read the messages from the early years who are still committed to the larger community of families with tuberous sclerosis complex Over the past forty years his organization has demonstrated an unrelenting commitment to change the course of the hardships faced by us all. I will always be grateful to each and every family member, volunteer, friend, staff , physician, researcher and the community. Yes, I recall realizing when my daughter was diagnosed and I was faced with all the unknowns of our future, that I would need a community to help her and all of the families.
Would you volunteer for this group again?
For the time you spent, how much of an impact did you feel your work or activity had?
Did the organization use your time wisely?
Would you recommend this group to a friend?
When was your last experience with this nonprofit?