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1 reviews

Review for National Tuberous Sclerosis Association Inc, Silver Spring, MD, USA

Rating: 5 stars  

Without the TS Alliance (formerly NTSA), me and my husband would have been lost in fear and ignorance 15 years ago when my then 6 month old son was diagnosed. Never heard of this disease and felt completely alone, lost, afraid. They are there whenever we need them, so we are totally involved with their volunteer work as they need us. How great it is for us to have somewhere to turn for answers, community connections, people who walk in our shoes. I personally would not know what I would do without this organization!

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Did the organization use your time wisely?

Very Well

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Role:  Volunteer