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Review for Cystic Fibrosis Foundation Headquarters, Bethesda, MD, USA

Rating: 5 stars  

As the mother of a daughter with Cystic Fibrosis, I have found the Cystic Fibrosis Foundation to be the most authoritative and accurate source of current information regarding CF. This information is indispensable to everyone with any connection to Cystic Fibrosis, especially to parents of newly diagnosed children. The CFF is also incredibly efficient, spending less than ten percent of money raised on administrative costs, and more than 90 percent on cutting-edge research in search of lifesaving treatments and a cure for this devastating disease. In fact, funding and research from the CFF has resulted in almost every available CF therapy and drug. Its most recent success is Kalydeco, the first drug to address the underlying cause of Cystic Fibrosis. While not a cure, It has the potential to GREATLY improve the quality of my child's health, as well as the health of others with CF. My family, friends, and I proudly support and promote the Cystic Fibrosis Foundation.

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Role:  Volunteer