October 27, 2012
My daughter and I were just diagnosed with VHL this summer. VHL Family Alliance and Inspire have been a God send for us!! Using the site, we were able to locate specialists in the area and the clinical care center. It has also allowed us to have important questions answered and to share concerns with others who are struggling with this syndrome. With all the misinformation that circulates on the internet, it is reassuring that we can go this site knowing that the information is relaible, relivent and updated.
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MY ROLE:Client Served