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sok345

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1 reviews

Review for National Tuberous Sclerosis Association Inc, Silver Spring, MD, USA

Rating: 5 stars  

We found the TS Alliance a few days after our 5-month-old daughter received her diagnosis. It was so wonderful to speak with someone who could talk to us about the disease and gave us a chance to ask questions. The TS Alliance also put us in touch with the regional chapter in our area, which in turn connected us to a TS specialist and network that we did not have in our own state. This connection was life-changing for our daughter! The TS Alliance website is a wonderful resource and provides a wealth of information to parents like us as well as to docs and educators. They are an invaluable source of support...and most of all they give all us hope--hope because we know we are not alone in this journey.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

Role:  Client Served