October 27, 2012
I was a board member of the Tuberous Sclerosis Alliance too, but I started and my heart remains with the dedicated volunteers who support the efforts of this Nonprofit. The Tuberous Sclerosis Alliance is a wonderful organization, led by dedicated and talented staff, but ultimately propelled the most by the dedicated volunteers who have served past and present. I have met so many wonderful people of all ages and involvements, whether they are an adult with TSC, a parent or a caregiver or friend of someone who lives with this illness. Not only are there successful fundraising events but there is a strong mentoring core that propel movement in research and government relations. I have received so much support through the thick and thin with my walk with TSC from so many in this organization at several different levels. But most of all I found it empowering I could learn, develop and grow as a person with the volunteer opportunities that I was offered. There is so much hope and positive momentum and I believe a lot of it comes from the partnership the organization maintains with its volunteers, but also the relationships they foster with researchers, government, and other organizations. We've seen real inroads through these efforts, and it all leads us back to the mission of the organization. A mission we all hold dear to our hearts no matter what role(s) we play at any one time. Quite impressive from an organization that just started with 4 mothers getting together trying to figure out ways they could help their children live the best quality of life possible with a sometimes cruel and relentless disease.
Would you volunteer for this group again?
For the time you spent, how much of an impact did you feel your work or activity had?
Did the organization use your time wisely?
Would you recommend this group to a friend?
When was your last experience with this nonprofit?