October 27, 2012
My 21 year old daughter was diagnosed with Tuberous Sclerosis when she was 8 months old. In 1992, without the internet it was much more difficult to obtain information. I don't even remember how I discovered the National Tuberous Sclerosis Assoc., as is was called then, but what I do remember is the relief I felt in knowing that there were many others in our situation. I was quick to volunteer as a "state representative" and attended every educational and fundraising event as I possibly could. As the years have gone by, the organization has grown and their efforts don't stop. They fund research, provide family support, continue education and increase awareness. I am amazed at this wonderful group of people who continue tirelessly to raise funds so that families like ours can benefit. Thank you TS Alliance for all you have done for my family personally.
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MY ROLE:Client Served