October 27, 2012
One of my very dear friends has VHL. I spend a lot of time going to doctor appointments with her and supporting her in any way I am able. I have tried to learn as much as I can about VHL and have found the VHL Family Alliance invaluable. Their portal is nothing short of a Godsend. We use it often to chat with others about different doctors and approaches. Joyce Graff is an angel and an amazing resource. The VHL community is blessed to have the wonderful organization.
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MY ROLE:General Member of the Public