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suzanne.baumruk

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VHL ALLIANCE
October 27, 2012

One of my very dear friends has VHL. I spend a lot of time going to doctor appointments with her and supporting her in any way I am able. I have tried to learn as much as I can about VHL and have found the VHL Family Alliance invaluable. Their portal is nothing short of a Godsend. We use it often to chat with others about different doctors and approaches. Joyce Graff is an angel and an amazing resource. The VHL community is blessed to have the wonderful organization.

More feedback

Will you volunteer or donate to this organization?

Unsure

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2012

MY ROLE:
General Member of the Public