October 27, 2012
This is the most useful Non Profit portal for VHL patients. The Portal is very informative and help the patient to understand about VHL disease and precautions to be taken. The most important about this portal is that people who have such disease are able to interact with other patients and share their experience. Hats off to Joyce Graff who is very cooperative and informative on this.
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MY ROLE:General Member of the Public