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Susie J.

54 profile views
1 reviews

Review for VHL ALLIANCE, Boston, MA, USA

Rating: 5 stars  

This has been a really useful portal for information and support through to HLRCC, a rare genetic condition. Without the VHL Family Alliance I don't think our tiny group of sufferers would ever have been able to come together and share the life-saving information for patients, family and professionals. It has provided sufferers with a platform, a voice, information, comfort, support.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Likely

How do you feel you were treated by this organization?

Quite well

When was your last experience with this nonprofit?

2012

Role:  Client Served