GreatNonprofits: Find non-profits and charities to review, donate, or volunteer.

Oops! You must enter a search term greater than 3 characters.

Susie J.

Susie J. - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits
47 Profile Views
1 Reviews

Login to send private message
Click here to get your favorites badge.
October 26, 2012

This has been a really useful portal for information and support through to HLRCC, a rare genetic condition. Without the VHL Family Alliance I don't think our tiny group of sufferers would ever have been able to come together and share the life-saving information for patients, family and professionals. It has provided sufferers with a platform, a voice, information, comfort, support.

More feedback

How would you describe the help you got from this organization?


How likely are you to recommend this organization to a friend?


How do you feel you were treated by this organization?

Quite well

When was your last experience with this nonprofit?


Client Served