My Nonprofit Reviews

Susie J. - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits

Susie J.

69 profile views
1 reviews

Review for Vhl Alliance, Boston, MA, USA

Rating: 5 stars  

This has been a really useful portal for information and support through to HLRCC, a rare genetic condition. Without the VHL Family Alliance I don't think our tiny group of sufferers would ever have been able to come together and share the life-saving information for patients, family and professionals. It has provided sufferers with a platform, a voice, information, comfort, support.

How would you describe the help you got from this organization?


How likely are you to recommend this organization to a friend?


How do you feel you were treated by this organization?

Quite well

When was your last experience with this nonprofit?


Role:  Client Served