My Nonprofit Reviews
Review for VHL ALLIANCE, Boston, MA, USA
This has been a really useful portal for information and support through to HLRCC, a rare genetic condition. Without the VHL Family Alliance I don't think our tiny group of sufferers would ever have been able to come together and share the life-saving information for patients, family and professionals. It has provided sufferers with a platform, a voice, information, comfort, support.
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